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Sarah Weldman and Orley, who was filmed in the early summer of 2021. Orly was finished from the second round of chemotherapy after liver cancer had spread when she was asked to participate in a project that narrates the beauty of baldness.
Abby Greenawalt/Sarah Wildman
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Abby Greenawalt/Sarah Wildman
In 2019, Sarah Wildman’s daughter, Orly, was ten years old when she was diagnosed with liver cancer, a rare form of liver cancer. During the next few years, Weldman Orly disease dates to New York TimesWhere is a writer and editor in the opinion section.
Wildman articles detailed the Orli seizure with several rounds of Chemo, liver transplants, brain surgeries and a tumor that discloses the spine, leaving them unable to walk. Orly died in March 2023, at the age of 14.
“I thought I understood the pain, but she was facing a kind of pain that I realized that I had never faced him,” says Wildman. “She was asking me sometimes,” What do you think I did so to deserve this? “Of course, this is not a responsible question.”
Weldman also wrote about the medical care experts received by Orly – and some doctors and nurses did not want to speak frankly and realistic about what she was facing. Wildman believes that the medical establishment tends to see the child’s death as failure. As a result, she says: “There is hesitation in the face of the idea that medicine has limits … … Children’s hospitals always announce the treatment of children.”
Wildman says that Orly’s disease and his death made her question from her Jewish faith: “She had to redefine what God meant. To help us and this was not afraid of us. “
Orly had reached 16 on January 13. To celebrate this occasion, Wildan and her younger daughter, Hana, spent the weekend in doing things they thought Orly would have enjoyed it.
“I think one of the truly difficult things against a parent who lost a child … is that you cannot improve it. There is no better than that,” she says. “What is easier, when people are not afraid of mentioning her name or reminding me of a story or telling me something I did not know that she told them or that she did for them.”
The most prominent interview
When you get an interview with Orly on Instagram
I wanted people to see what it means to be a child in caring for cancer, a truly detailed child, a child who was really struggling with and thinking about it and thinking about it, especially at the middle of the recipe where people were exhausted from closing, really feeling very sorry for themselves . What Orly does in that interview, in addition to a kind of victory over everyone who watches it, is to reorganize a kind of way people think about their grief, their feeling of isolation, and to show how she was very happy even during very difficult experiences.
About questions, Orly and her sister Hana asked that Wildman struggled to answer
At one point, we had a very severe experience as it ended in the Hawaiian intensive care unit. We were on a Make-A-Wish trip. It was brutal and frightening. Hana said, “Do you think that God does not love us?” Types of questions they asked during this, I really showed my hand, if you will. I was not really able to provide a tangible answer to any of these things. I would like to say that I don’t think there is a god that is the activist in this way – because there is a lot of pain around the world and we are facing this. But I do not think it is a matter of God does not love us. You have to see divinity in the people who help us. I will try to turn it into thinking, “How can we see well in the situation?” But sometimes I was really stunned.
On raising a child with terminal disease
It really challenged paternity and motherhood. … I did not know how to discipline this space when all the rules seemed to have been delivered from the window. I didn’t know how to set boundaries on things. How do you set boundaries on the phone when you have a very little external reaction? How do you say that you really focus on algebra when you do not really know if any of them matters? It is really difficult. And I once told her, “Well, isn’t it good to have a lot of time together, and we really get to Bond?” She said, “This is the time when it is supposed to be separated from you.” She was happy, satirical and working, and she was often tried to push the limits of allowing it when she could.
Orly (the third of the left) is presented with her parents and sister Hana on her thirteenth birthday in 2022.
Miranda Chadwick/Sarah Weldman
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When maintaining hope and optimism during Orly treatment
I think hope can be a form of denial. It can also be a stimulation force. This may mean that you are looking for treatments that give you days or months and perhaps even years. I think hope is necessary because cancer care is exhausting. It can be frustrated to face the consequences of cancer care. Caring for cancer that comes itself with pain can be. It comes with nausea. It comes with hair loss. I can come with all kinds of insults. …
It was brutal because she really tried to live every moment in a huge way. You really liked to live and you will try to make life different in the hospital. I mean, you have made every single nurse danced with her. She would have made musicians sing Lizo, Olivia Rodrigo and Taylor Swift, and Taylor Swift and Lezo would play in every operating room. She had many surgeries. She was forcing people over and over to see her not sick, but as a person.
I wanted to give her everything. I wanted to buy her time.
Monic Nasseri and Susan Niacondi produced this interview and edited to broadcast. Bridget Bentz, Molly Seavy-Seper and Beth Novey adaptive to the web.